Showing posts with label NICU. Show all posts
Showing posts with label NICU. Show all posts

10.29.2009

Fleeting Memories

I was told right after you died, to write my memories down. The small ones, the ones I cherished because they happened with you. The ones I thought surely I'd never forget. I am so glad I did.

There are times like today when you feel not just dead, but far far away. So far away that your life is like a dream. But then I see that picture in the kitchen and I know you happened. I am so sorry. I hate that my mind does this. I can't even pinpoint what drags me into this abyss where you just seem so far from me. Maybe it has to do with time, and how six months will be here too soon.

Regardless, I want to share a memory or two that I have written down. It's been awhile since I let myself crack these open. They hurt, Jenna. They hurt. But I want to be close to you again.

Right after you died, no sooner would my eyes start to well up with tears that I would hear your soft sweet spirit assuring me "I'm okay, Mommy."

But now that's gone. I know you're okay, but I miss that feeling of how I just knew you were right there next to me as Mommy was balling her eyes out in the car at the red light.

I remember...
Being afraid the first time I laid eyes on you in the NICU. I asked the nurse if it was okay to touch you and she let me. I was so afraid of hurting you. She did tell me not to caress you since your nervous system had not fully developed and caressing would more than likely agitate you. I could not believe how small you were! But also pretty long for such a small baby. It was so surreal to behold the very creature that only hours prior had been kicking me furiously with that stupid monitor strapping you down! Fearfully and wonderfully made - what a truth! Your feet were long and your fingers were long too, just like mine. I told everybody that they would not go to waste and would definitely be learning the piano. =) I could not wait. I remember observing you for hours on end and studying your fingernails and toenails. How perfect you were.


You never let in on how much pain you were really in. I still can't move past that point of how much pain I am no doubt responsible for. But I was trying to give you every chance to live. The doctors never let us believe that it was hopeless until the end. We had to believe in those small chances, every last one of them - if it meant fighting to keep you with us. Thank you for being such a fighter, Jenna.






9.27.2009

Nothing


Dear Jenna,

What I wouldn't do to hold you again
To look on your sweet face
The very one who completed my world
for 13 days

What I wouldn't do to be your mommy again
To be by your side,
Even if meant there in that cold room
With doctors and their fancy words
We knew nothing about

What I wouldn't do to watch you move
and try to open your eyes
Wondering at the world as I wondered
at the color of your eyes

What I wouldn't do to watch Daddy stare at you
So proud of his firstborn daughter
It was new, so new
And perfect

What I wouldn't do to let you know I love you
To explain the very meaning of this hurt
Because I loved and love you
Deeply

What I wouldn't do to empty myself of this life
That constantly throws
Reminders at me
That once upon a time I was a mother...

What I wouldn't do to divorce myself from the grave
That knows my daughter all to well
And mocks me the times that I visit you
As if victory ended that day

What I wouldn't do to make the world see
that people hurt everyday
that babies don't always come home
And that you existed

What I wouldn't do to hold your hand again
The memory of that perfect feeling
Pierces me and it hurts
To remember how happy you made me

What I wouldn't do to make myself just see
That you really are alright
That Heaven is beyond what this world could ever give you
And you still know me as your mommy.

I love you, my precious Princess Jenna Belle


9.24.2009

New Embrace


I doubt it is anything new, but since Jenna passed, its like the amount of sick children and infant loss has magnified. There was a time I really did not know babies died. It was a long time ago, but I was just that dumb. There was a time I thought only drugs and accidents could harm a pregnancy, and things like smoking or alcohol. I had no idea that you could do everything right and still bury your newborn. But today, it's just not about me. I have had a heavy heart for some time. And it is mostly about Jenna, but it also aches because there are so many children who are still fighting for their life. Their parents are daily making hard decisions that involve life and death, decisions that no parent should have to face.

I have wrapped my mind around this thing and choose to embrace the fact that I can relate to this heartache that I used to know nothing about. I am not the least bit happy that this is what life has dealt me, but it is the way it is. I choose to embrace it, on some level. There are days that it is hard and I feel like I am embracing a cactus, and at the end of the day I have scars all over my body. But then there are days that I feel like Jenna did not die in vain if I get to help somebody else. I can never justify her death, only attempt to make it count.

I wish you would pray for Lydia Eileen. She is in the NICU and is having breathing problems and seizures. The hospital, last I read on her blog, is preparing her parents to take her home. There is still some uncertainty. I hope you can visit her blog and offer some encouragement.

9.17.2009

Just What I Needed




Today I was having a day that started ok but quickly spiraled downward. When I checked the mail, I found this in the mailbox and it made me cry more, but it was just what I needed. Thank you, Deborah.
In case you don't know, Deborah sends babylost mamas these beautiful handkerchiefs from her blog For Your Tears.

Aside from this gift being the consolation I needed, it was also perfect. When Jenna died, we dressed her in a white dress with lavender embroidery at the top. I will always associate the color lavender with her death. The night she was born and put in the NICU, the nurse put a bright red bow with polkadots on her sweet baby curls. But I wanted to keep that bow as a precious precious memory. So to match her dress, we put a white bow on her. Anyway, I just wanted to openly thank Deborah and share this bittersweet moment. God really does care about us.

9.16.2009

I Heart Birdies



I am posting this in response to Danielle's post about what reminds us about our babies. Please visit Danielle's blog to partake in this post and/ or read other mamas' stories.

I have a lot of little reminders that follow me everywhere I go. There are times that it hurts like CRAZY and there are times that it brings me pure joy, because I have the privilege of being a mother. I will always be a mother, even if I never have another child. It does something for me that I can say that I have a daughter. Don't get me wrong, there is nothing I would like more than to just hold her again, but it was an honor to get to be by her side those 13 days and know that she knew me as her mother.

The biggest reminder for me are birds. Flying birds, sitting birds, cartoon birds...

When my husband told me years ago that he wanted to name our first girl Jenna, I liked the name, but I was not crazy about it. His little cousin is named Jenna and he just fell in love with the name. I agreed to it since it meant so much to him and I hadn't thought too much about baby names at all.

When we found out the baby I was carrying was a girl, there was no debate. We named her Jenna and scoured to the end of the earth for the perfect middle name. I would later find out that Jenna means "small bird".

How incredibly perfect for our 1 lb, 1 oz miracle of pure joy.

Ponies also remind me of my angel. Her grandfather promised her a pony when she turned five while she in the NICU. He really meant it too. He would have spoiled her rotten. =)

Thank you for reading about my Jenna

8.07.2009

First Dream

I wish I could dream about you
like before
Before the fifth, before the NICU, before the nightmare.
Only it wasn't a nightmare.

We lived it didn't we?
You made it out alright
I'm not sure I did
Lots of rain, even when its sunny
And there are storm clouds even on a "good" day

Weak smiles, guilty laughter
Just know I always miss you
Life demands I keep on going
Even when I want to stop
I have to keep surviving

My sweet precious Jenna Belle
Your days will always be remembered
Your death I won't let ruin me
So when I seem like I'm alright
Struggling to show the deep corners of my heart

It sinks everyday,
but for you, because of Christ
It will be ok
Just know I always miss you
You will always be our firstborn
And not forgotten

The house you never lived in feels empty
And that chokes me to tears
My heart cries when my eyes can't
Loneliness in a crowd is such a paradox
But it's real.

Part of the sorrow is comforting
The part of you that lives in me
How I wish it could be you kicking me inside instead!
Useless wishing
I better just be thankful

You held on
You fought
No, I haven't forgotten
You saw us and you loved us.

A lifetime ago
But not really
I hate that time steals the tenderness of it all
The world is forgetting, but not me
My heart stands still as the world around me spins

My dear child, my first dream
First hopes, first steps
First words
First haircut
They would have been our firsts.

Someday I might wake up in a better place
Far from heartache
Tears
Broken smiles
Lost joy and bittersweet memories

But if that's what it takes to remember you
You're worth it
Life is precious
Heaven is sweeter,
My precious daughter.

Jenna's Name Slideshow

Thank you so much for emailing me pictures of my Jenna's name. It means so much that you took time to remember my Jenna with me. XO